Parents like me need more help. I couldn’t cope with having my severely disabled daughter back at home full time
Like most parents, I love my child with all my heart. Unlike most parents, if there’s a Covid-19 case at her school and it has to close again, I could lose her.
My daughter Liora Sangeeta is 14, she has complex needs: epilepsy that medication can’t control, a chronic kidney condition and autism. Liora can’t speak and she’s doubly incontinent. She also has a habit of hitting her own head with her fists, as hard as she can, raising big bumps and sometimes blood. She’s under the care of Great Ormond Street hospital and needs medication 15 times per day.